Lucinda guest blogging here, I thought I'd give you all an update. Since the last post Lucie has declined pretty significantly. Fortunately she is in no pain, and at the moment resting comfortably. Over the last 48 hours she has gotten increasingly disoriented, confused and agitated. Last night was a tough night for sleeping because she was moving around and sitting up quite often, and talking at regular intervals.
The hospice nurse put her on a new drug regimen that seems to have helped with the restlessness, and she got a massage from a hospice volunteer which I think she enjoyed. There was even an impromptu singing session with Mary, myself and the hospice nurse, and Lucie sang along.
She still has moments of clarity, and smiles when you walk into the room. Sometimes she'll be sleeping and have a huge, beautiful smile on her face, so I think she's having good dreams.
As always, thanks to everyone for your love, care and support. I'll keep you posted.
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What do you do when you find out you have pancreatic cancer? Tell everyone about it, of course. Why "green bananas?" Because we keep buying them as a sign of faith in the future. What do we need from you? Good thoughts and the occasional bad joke.
25 comments:
Cinda, thank you for this. my heart goes out to you and Jerry and your brother. Your mom is so delightful. I know that part of the reason she has a smile on her face is because of the tender loving care she has been receiving. My best, Adrienne
I was so looking forward to Lucie's book and to her becoming the poster child for pancreatic cancer.
I can't convey how much I've enjoyed spending time here.
The very warmest wishes and hugs to you all. Paula x
Love you so much, Cinda, and thinking of you all. Please give your mom a hug for me.
Love,
Jo
Lucinda-
Your mom was so kind and supportive when my mother was diagnosed with pancreatic cancer in December and when she passed away in June. Lucie made a point of telling me how important it was to take care of the caregivers, too. (Chocolate, yarn and single-malt scotch were mentioned). I will be thinking of you.
Nancy (ravelry)
Please know that a fellow knitter, book lover, and grateful reader is thinking of Lucie and her family.
There is someone here in my town that reminds me of what I think Lucie must be like - she even looks like her! - and I spent time with her yesterday, unexpectedly. It made me very happy, and I thought about Lucie and what's happening with her - and with you all - a lot yesterday. I don't know what else to say but that her personality shows so much here, and it's been such a wonderful thing to get to 'know' her via this blog, and her vivid descriptions of her life and children are so wonderful to read, and at the same time make me feel as if I know all of you, and I wish so much that there was some way I could help in this difficult, difficult time.
I'm thinking about all of you, sending positive light your way. I'm thinking more of Lucie's family as Lucie's body does the final work of letting go. It's scary to be witness to these days and I wish you all mental health and clarity and peace. -- Debbie (Max's friend)
Oh! Love and hugs to Lucie!!!! I miss her terribly and still half-expect her to walk in to band rehearsals and concerts... She is so full of warmth and laughter! Love to all of you! Thank you, Cinda, for posting.
Sending all of you peace and hugs.
Thanks Cinda. Lucie, Jerry and all of you are on our minds thru-out the day. We send our love. Our family has such fantastic memories of traveling back there and spending a week in the summers. We are so glad that we have bonded with all of you back there. At this time I like to think of the song: "Tomorrow" from Annie.
Russ & Rita
Cinda, thank you for taking the time to update this page. The news is tough to hear, but even tougher for you to live!
Your mom & dad, and you! are in my constant prayers for whatever is best . . .
hugs, r
Thank you for updating Lucie's blog, Cinda. Don and Ethan and I are keeping all of you in our thoughts, and send good energy and prayers to you up on the hill.
Lucinda.
Thanks so much for the update. Please know that you and your family are in my thoughts. Even though I didn't know your mom well, the childhood memories I have of your parents and family will be with me forever. Your mom was always full of grace and peace....very inspiring. Warmest wishes to you all.
Take care, Bev (Germer) Thompson
Thank you Lucinda for the update, it means a lot to keep in touch at such a difficult time.
I am sending all my love and thoughts to Lucie, you and your family. I hope she remains peaceful and comfortable. She is a brave and inspiring woman.
Look after yourself too,
Sarah (ravelry)
Hi,
I got in touch with your mum via ravelry, she was very supportive when my mum was diagnosed with pc (we lost her in january). She's offered alot of support and hope to many people, whilst bravely coping with her own journey. Sending Lucie, you and your family lots of love.
Emma.
Cinda, it's me again. I just read feresaknit's post. I thought it might be a good idea to let the readers know that Lucie DID finish her book! It is an excellent book and I am currently trying to find an agent for it. The name of the book is: Green Bananas:Thirty Months of Life with Pancreatic Cancer. Lucie calls it part how-two and part inspirational memoir. Ironically, she finished the last chapter just as she entered these last weeks. If anyone has ideas for how to get this agented/published, please blog!(FYI-I've queried agents who specialize in this field,and I subscribe to Publisher's Marketplace online.) I'm wondering about hospital publishing offices, non-profits, etc. She wants part of any proceeds to go to Pan-Can.
Here's hoping! Adrienne
Dear family, especially Lucie,
We are so fortunate to have become part of this family when Max married Anya. We treasure the connection. We ache with you at this time, and send our love and our hugs.
Diana and Bob
What an amazing world we would live in if we could all have the grace and love your family is showing these days.
Prayers and love for you all.
thanks for the update cinda. not a moment goes by that i don't think of your sweet momma and all of you that are there helping her through this. we love you all so much.
I can't remember how I first stumbled upon this blog, but I have been following along with Lucie's ups and downs for over a year now. She has shared such wonderful and honest thoughts about this journey, they will stay with me always.
Please know that my thoughts and prayers are with you and your family....melissafromrye (ravelry)
Dear Cinda--Thanks so much for taking time to post now. My heart is full of wonderful memories of your family when you were just a toddler. Your mom was always the epitome of common sense and compassion and good humor. My love to your dad, and you and Max and your spouses, and Miles.
My prayers are with all of you. Give dear Lucie a gentle hug from me, and a big one for the rest of you. Thank you for keeping us posted.
Thank you for the update, Cinda. Uncle Ray and I are thinking of all of you during this difficult time.
Love,
Aunt Loretta and Uncle Ray
My heart goes out to you and your family. I started the group on Ravelry for pancreatic cancer support and got to know your mom through her frequent posts. I lost a loved one, my 46 year old sister in law, 18 months ago to pc. All that I can say at this point is that there is a reason in life for things that happen. We don't know why, but there is a reason.
I am thinking of you,
Rosemary
Cinda. It's Lori Germer Carter. I'm sorry to read your last post. I have fond memories as a child of your mom and dad. I feel like I have gotten to know your Mom as an adult through her blogs. She is not only a wonderful writer but a wonderful person. It is very clear that your Mom and Dad love each other very much. I'm taking from her the following...have a glass of red wine and a piece of chocolate every night. What a wonderful way to celebrate love and life. I'm thinking of you Uncle Jerry and Max. Love your cousin Lori
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